Protocol for the denial of care:

Medically stable patients with complex diseases, that include an Intractable Pain component are being tapered forcefully from their pain medications. This is being done without regard of medical need, patient compliance, improved function and quality of life. Increased pain, loss of function and death are being reported nationwide as a result of these practices.

Steps for patients and family members to take when pain care is denied, and for patients being forcefully weaned from opioid medications without medically supervised tapering. Also included is recommended recourse for family members who have sadly lost a loved one due to denial of pain care, or forced, too rapid, unsupervised tapering.

Recommendations:

  1. Immediately file a complaint with your State Medical Board.  Name all the doctors who neglected to treat your family members pain in a meaningful way, or report sudden withdrawal if previously Rx’d opioid medications are denied without medically supervised tapering. Report failure to prescribe opioids as a last option after all other methods have failed, if indicated, or refusal to provide appropriate withdrawal medication and supervision after sudden -too rapid tapering.

  2. Condense long medical history into a short version. Be brief. Send this version to your 2 State Senators and your Congressperson.  Tell them that you believe Federal Policies and State guidelines may have prevented you/your loved one from getting the help you/they needed.

  1. See if an attorney will take your case as “malpractice”, “manslaughter”, or other. Physicians are willing to testify to sub-standard care.

  1. Try to find care from your local PCP or Family Doctor. Many pain specialists are anesthesiologists, and only perform interventional procedures. Many current Intractable Pain patients have been injured from interventional procedures in trying to treat their pain. The trend is currently to treat pain with interventional procedures and surgeries. Never be coerced into procedures or surgeries as a way to have your pain treated with medication. If this happens, send a complaint to your State and County Medical Association, Board or Society.

  1. Send your story to the head of the CDC, HHS, FDA, VA, and DEA. Contact Local and National media outlets and magazines such as Practical Pain Management, Pain News Network, National Pain Report, etc.  

    DISCLAIMER: This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice. The information in this website should not be considered complete. Information obtained on this website is not exhaustive and does not cover all diseases, ailments, physical conditions or their treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.  If you think you may have a medical emergency, call your doctor or 911 immediately. FIPR- Families for Intractable Pain Relief does not represent to be an authority, please contact your physician. We share information from other organizations, advocates and or websites.