1. Bring awareness of our family members with rare disorders and legitimate severe, Intractable Pain disease to all concerned parties.

2. Advocate for access to standard and non-standard pain therapies, including opioids and non-opioid medications, appropriate physical therapy, electromagnetic therapies, hormonal support, and full comprehensive medical care.

3. Advocate for access to qualified physicians in every community who can and will provide standard and non-standard therapies for our family members with rare disorders and unique medication metabolism. No patient should be left to suffer in pain in any community.

4. All policies, guidelines and decisions that affect pain care on the federal, state and local level MUST include an Intractable Pain patient or family member in the process. “No more about us without us.. Ever.”

5. Create support networks for patients and their families. We want to make sure there is a qualified physician in every state that is willing and able to treat those with Intractable Pain. Patient and family well-being is upmost of importance.  We want to make sure there are support networks for the physical,  emotional and spiritual well-being of family caregivers.

We are all in this together!


DISCLAIMER: This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice. The information in this website should not be considered complete. Information obtained on this website is not exhaustive and does not cover all diseases, ailments, physical conditions or their treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.  If you think you may have a medical emergency, call your doctor or 911 immediately. FIPR- Families for Intractable Pain Relief does not represent to be an authority, please contact your physician. We share information from other organizations, advocates and or websites.